The Boy Whose Skin Fell Off

Overview

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

Release date

Mar 25, 2004

Rating

7.5 / 10

Runtime

0 hours 50 minutes

Genres

Homepage

http://www.channel4.com/programmes/the-boy-whose-skin-fell-off

Cast

Crew